Ditto!

To those of you who always ask why, here is a nice little summary of lung disease. It can be found on Eliza Grace's blog titles "The Tree(s) of Life". Here are a few pictures of Elizabeth using the various devises mentioned in the posting.

Ventilator

CPAP

Nasal Cannula

A follow up to my last posting: 5 sick doctor visits. 3 prescribe medications. 2 current medications increased. 2 sick girls

Symptoms and diagnoses included: fever (both), pink eye (Ava), NASTY cough (Elizabeth), asthma (both), sinus infection (Ava), & a sore throat (Ava)- I think that covers it.

Tis the Season

It's that time of year . . .

So far we have been lucky and it has "just" been colds and a sinus infection.

Good Growing!

Elizabeth had her best doctor's appointment yet yesterday. In fact we both got high fives on the way out!

Elizabeth is now 21 pounds and 6 ounces! Yes, I know to you that might not be so much, but that is 21X her birth weight in 2 years. And over a pound in 3 months. She is now the closest to the curve that she has ever been; 2 1/2 boxes to be exact- 1% here we come!!!

Her height was even better- almost 34 inches putting her ON the curve in the 2% range and her head by far was the best measuring in the 50%, we have had some good brain growing here!

The down side was that he thought it best to keep her as secluded as we can again this year.

Elizabeth still has "doctor's orders" to eat ANYTHING she wants, but at least this time we weren't given orders to have a Happy Meal lunch!

Happy Halloween

I know a little late, but here are some pictures of Snow White and Alice in Wonderland.

Have Fun - Help Babies!

Sounds like a win win to me!

As most of you know, I am a member of the Family Advisory Board. This boards focus is helping parents with children in the St. Joe's Neonatal Intensive Care Unit (NICU where Elizabeth spent the first months of her life and received the most amazing care)

There are two wonderful fund raising opportunities coming up soon and I wanted to ask for any assistance you can give.

The first event coming up is Shop For a Cause. This is a fundraiser hosted by Macy's. I am selling a 20% off coupon for all purchases and 25% a single item (some exclusions) for the day of October 17th. The ticket is $5.00 and the proceeds go directly to the Family Advisory Board.

The second event is the 5th Annual Silent Auction and Fashion Show. This is an amazing evening that features NICU graduates as models. The show is on Thursday, November 12th. The silent auction and reception begin at 5:30. The fashion show begins at 7. The event will be held at Washtenaw Community College in Ann Arbor. The price of admission is $25.00 and the proceeds go directly to the Family Advisory Board. The girls and I will again be models!

If you are interested in supporting our cause please contact me for tickets. If you are unable to attend the Fashion Show or do not shop at Macy's, but still want to donate, please let me know.
You can email me with any questions or to donate or leave a comment.

It is important for our group to continue to be able to support the many families that go through the NICU each year. Your support is greatly appreciated!

My Fashionable Girls!

Fall Fun!

Lots has been going on here but here are a few highlights-

Ava's first day of school

Fall Soccer

And of course our annual apple orchard trip- we got a little wet but still picked our apples and bought the very important doughnuts!

Developmental Clinic

Elizabeth had her last developmental clinic visit in August. This is a clinic at our hospital the evaluates low-birth weigh babies and others who may face developmental challenges.

It really came as no surprise that Elizabeth did great. To be honest I knew that she would do well, but there is always that little seed of doubt.
After two hours of "testing"; Elizabeth scored in the normal range for cognitive and superior for language skills! Based on what they saw they don't foresee and learning problems in school- We shall see- I was several weeks late and can't spell or do math with "letters" or at least with more than one letter!

Before she was born I was given the "what to expect" speech with statistics and typical outcomes for babies born so early. I was told- she probably would not survive- about a 20% chance. IF she did she would have (not she might, but would) significant delays in something. She may not be able to see, hear, walk, or maybe just have serious learning problems. I am not saying there aren't lasting problems with her traumatic entrance into the world, they just are not those ( I do need to add that without the laser surgery done on her eyes she would have been blind). I also know what a miracle that she is and that MOST micro-preemies have very serious issues in many areas. Depending on what study you look at Elizabeth's outcome is between 1-9%. It is hard for me to think of it in these terms and I really don't like to. Survivors guilt? Maybe? Perhaps it is just another reminder of how close she was to NOT being here and how easily her life could have gone another way. For now I am happy just to remind myself when she is especially "out of sorts" that she is a miracle and I should just be thankful that she just painted the wood floor green!

and of course we followed up of clinic visit to where else but the NICU to visit some fantastic people!

Showing everyone her Disney picture

We love the St Joe NICU staff!!!