A special kiss from Snow White (we didn't see any other kids with kisses all 4 days we were there!)
Not so great of Matt, but look at the smile on Elizabeth! We couldn't believe how much she loved the tea cups!
Festival #1
1 week ago
Monday, July 6, 2009
Disney Dreams
We just got home from a fun filled week at Disney. Here are a few pictures with more to come (over 700 were taken between all of us! Good thing we don't use film anymore!). A great time was had by all!
A special kiss from Snow White (we didn't see any other kids with kisses all 4 days we were there!)
Not so great of Matt, but look at the smile on Elizabeth! We couldn't believe how much she loved the tea cups!
A special kiss from Snow White (we didn't see any other kids with kisses all 4 days we were there!)
Not so great of Matt, but look at the smile on Elizabeth! We couldn't believe how much she loved the tea cups!Thursday, June 25, 2009
Where Have I Been?
It has been so long since I really have updated this blog. Late spring and early summer really kept me busy! Here is a quick re-cap of what we have been up to.
Elizabeth started a play group with Early On at the local school. It was fun for me a little over whelming for her. She was soaking everything up as she sat on my lap each time. When we got home she would sing the songs and play the finger plays. We are now going a few times each month over the summer. Elizabeth language has really taken off. She is using sentences and 4 words at time. She seems to understand everything we say. Her favorite thing to say when asked a question is to blame Ava. "Are you tired" "No! Ava's tired". We had another case of pneumonia. This was the easiest one. She was coughing for a few days and then developed a fever; we caught it so early she only needed that one visit! No ER visit! Weight gain and eating continue to be a constant thorn in my side. I hate that when I hold her I can feel ever bump in her spine, I can put my thumb and first finger around the thickest part of her arm. She is just so skinny! Her clothes hang off of her. The other eating challenge we are having beside quantity is her refusal to eat any fruit or veggies. Well she will eat spaghetti sauce and strawberries pureed and mixed with ice cream, other than that she simply refuses no matter how I try to hide them.
Ava has finished her first year of preschool and will return again next year. She misses the cut-off day by a month and a half for kindergarten. Which is fine with me, I am in no hurry for her to get so big. I missed the spring soccer sign up (I really have been busy!). There is no soccer this year. She is keeping busy and is now our head gardener taking care of the watering and monitoring the buds on all the flowers and plants. She does need so be supervised as she tends to over water the potted planets.
Matt is working and keeping busy building in the garage. He just finished an entry way bench. It looks great even though he didn't make it the way I wanted it done- I guess that his inner artist took over!
After the March for Babies I continued to go full steam ahead and was working on planning the NICU reunion at our hospital. It wasn't really too bad, but I often stopped and wondered what possessed me to volunteer to plan an event for 500! Thanks to all of you who helped with the planning! I thought the day turned out great and everybody seemed to have a good time. Matt is really happy that it is over!
Elizabeth getting ready for the horse race at the reunion.
My other time filler (or waster depending on how you look at it) is Twilight. If you haven't read these books maybe you shouldn't. A lot of my friends were talking about it so I thought I would give it a try and find my inner 15 year old. Totally addicted! They really are good.
Well that's it for now. I do have lots more to say; but the children do need some attention!
Elizabeth started a play group with Early On at the local school. It was fun for me a little over whelming for her. She was soaking everything up as she sat on my lap each time. When we got home she would sing the songs and play the finger plays. We are now going a few times each month over the summer. Elizabeth language has really taken off. She is using sentences and 4 words at time. She seems to understand everything we say. Her favorite thing to say when asked a question is to blame Ava. "Are you tired" "No! Ava's tired". We had another case of pneumonia. This was the easiest one. She was coughing for a few days and then developed a fever; we caught it so early she only needed that one visit! No ER visit! Weight gain and eating continue to be a constant thorn in my side. I hate that when I hold her I can feel ever bump in her spine, I can put my thumb and first finger around the thickest part of her arm. She is just so skinny! Her clothes hang off of her. The other eating challenge we are having beside quantity is her refusal to eat any fruit or veggies. Well she will eat spaghetti sauce and strawberries pureed and mixed with ice cream, other than that she simply refuses no matter how I try to hide them.
Ava has finished her first year of preschool and will return again next year. She misses the cut-off day by a month and a half for kindergarten. Which is fine with me, I am in no hurry for her to get so big. I missed the spring soccer sign up (I really have been busy!). There is no soccer this year. She is keeping busy and is now our head gardener taking care of the watering and monitoring the buds on all the flowers and plants. She does need so be supervised as she tends to over water the potted planets.
Matt is working and keeping busy building in the garage. He just finished an entry way bench. It looks great even though he didn't make it the way I wanted it done- I guess that his inner artist took over!
After the March for Babies I continued to go full steam ahead and was working on planning the NICU reunion at our hospital. It wasn't really too bad, but I often stopped and wondered what possessed me to volunteer to plan an event for 500! Thanks to all of you who helped with the planning! I thought the day turned out great and everybody seemed to have a good time. Matt is really happy that it is over!
Elizabeth getting ready for the horse race at the reunion.My other time filler (or waster depending on how you look at it) is Twilight. If you haven't read these books maybe you shouldn't. A lot of my friends were talking about it so I thought I would give it a try and find my inner 15 year old. Totally addicted! They really are good.
Well that's it for now. I do have lots more to say; but the children do need some attention!
Wednesday, June 10, 2009
Our Little Gymnist!
On Sunday we attended Ava's gymnastic show. It was a chance for them to show off all of their skills that they have been learning. Ava had fun and all of the children were awarded with their very own medal.
Sunday, June 7, 2009
Poop on the Potty!
Elizabeth is showing the early sign of potty readiness. She has gone on the potty twice, once by chance and the second time she asked to go and went! She will sit every day or so and knows that she get candy if there is any success. Hurray Elizabeth!
Tuesday, April 28, 2009
Thank You!!!
Thank You! Thank You! Thank You!
Once again our March of Dimes Team Elizabeth Grace was a great success. We had about 100 walkers decked out in purple shirts and raised $3400 and counting (last year $1500 was turned in day of, so I am sure our total will go up). Thank you to all of you who donated to our important cause, I surpassed my goal and raised $1156! Rain was a threat in the forecast for a good portion of the week; but the day could not have been more beautiful. There were thousands of people all walking for a common goal-to save babies. The girls both had a great time and I enjoyed seeing so many people we knew- friends, NICU staff, FAB friends, other NICU grads, and of course lots of church friends who were walking on Team Elizabeth Grace. The walk itself took forever mostly due to the long stays at the check-points. We started the walk near the front and ended up at the end!
Ava and Daddy
Marching for Babies- Elizabeth with Grandpa Eldon & Aunt Sarah
A Small Part of the team crossing the "Rainbow Bridge"
Elizabeth's sign along the walk.
Finish Line
Once again our March of Dimes Team Elizabeth Grace was a great success. We had about 100 walkers decked out in purple shirts and raised $3400 and counting (last year $1500 was turned in day of, so I am sure our total will go up). Thank you to all of you who donated to our important cause, I surpassed my goal and raised $1156! Rain was a threat in the forecast for a good portion of the week; but the day could not have been more beautiful. There were thousands of people all walking for a common goal-to save babies. The girls both had a great time and I enjoyed seeing so many people we knew- friends, NICU staff, FAB friends, other NICU grads, and of course lots of church friends who were walking on Team Elizabeth Grace. The walk itself took forever mostly due to the long stays at the check-points. We started the walk near the front and ended up at the end!
Ava and Daddy
Marching for Babies- Elizabeth with Grandpa Eldon & Aunt Sarah
A Small Part of the team crossing the "Rainbow Bridge"
Elizabeth's sign along the walk.
Finish LineWednesday, April 15, 2009
Happy 2nd Birthday Elizabeth!
Our tiny little girl is starting to become a "big girl"! Two years ago today Elizabeth entered the world without a sound or a breath. We were told there was only a 20% chance that she would live; she would probably not survive the week. So far today; she has climbed onto the window sill, watched the dogs and ducks out the window, danced, read 3 books over and over and over, watched Sesame Street, eaten 4 pieces of cheese and 3 apple slices, and spoke in sentences. (she has been up since 5:30, gives her lots of time to get stuff done!) I wonder what she will surprise us with tomorrow?!
April 2008
April 2009
April 2007
April 2008
April 2009
Saturday, March 28, 2009
March for Babies
On April 26 we will walk again in the March of Dimes March for Babies. The March of Dimes' mission is to give every baby a healthy start- in raising prematurity awareness, and in funding research aimed at prevention and treatment for babies born too soon or those with birth defects. Without advances made by the March of Dimes, Elizabeth would not have survived. Her lungs were simply too premature to work without the surfactant therapy the MofD helped to develop.
I walk so that someday no more babies will endure what she has. Elizabeth has scars all over her body- a PDA ligation scar on her back, little scars up and down her arms and legs from all the IVs she had, her heels are covered in tiny scars from the hundreds of heel sticks that were required, she has a large scar on the back of her leg, we think it is from a collapsed vein from a PICC line or when her umbilical IV was removed. What internal scars are there that we can't see? This should not happen to anybody's baby.
Elizabeth is a miracle. I now have the honor and call to help more babies. Please help sponsor me as I walk. I would really appreciate any donation, no matter how small and I would love it if you signed up to walk the us; wherever you may be you can walk there! You can donate or sign up to walk by clicking on the March of Dimes link on the right.
I walk so that someday no more babies will endure what she has. Elizabeth has scars all over her body- a PDA ligation scar on her back, little scars up and down her arms and legs from all the IVs she had, her heels are covered in tiny scars from the hundreds of heel sticks that were required, she has a large scar on the back of her leg, we think it is from a collapsed vein from a PICC line or when her umbilical IV was removed. What internal scars are there that we can't see? This should not happen to anybody's baby.
Elizabeth is a miracle. I now have the honor and call to help more babies. Please help sponsor me as I walk. I would really appreciate any donation, no matter how small and I would love it if you signed up to walk the us; wherever you may be you can walk there! You can donate or sign up to walk by clicking on the March of Dimes link on the right.
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